Paige Kuehmeier is Development Coordinator for the Palmetto Chapter of JDRF and survives on Daniel Island, South Carolina. She is one of those individuals whose interest is contagious. She and her husband Kevin began One Walk — a fundraising walk for research into Type 1 diabetes — on Daniel Island in 2009, and it has grown enormously, which implies more cash is being raised and more individuals are getting included.
Interview with a Mom of a Type 1 Child
AM: Tell me about your son’s medical diagnosis.
PK: Jay was two at diagnosis — 26 months old in fact. He was in diapers and simply entering his big young boy bed, so we didn’t suspect anything when he was getting out of bed and running to the bathroom to obtain water. We had no knowledge of Type 1 diabetes, and no history of it in either of our households. Luckily, we were speaking with a far-off family good friend one day who inquired about the kids, when we described Jay’s “antics” in the evening (drinking lots of water, wetting the bed) he stated, “Sounds a lot like diabetes.” We went home and looked it up online, and recognized the symptoms. We weighed him and discovered he had actually lost 12% of his bodyweight because his two-year consultation simply six weeks before. I waited up until Monday morning to call his pediatrician and requested a test for Type 1. They told me to come straight over, ushered us in, did a blood glucose test, and sent us right to the medical facility.
AM: How not long after his diagnosis did you get included with JDRF?
PK: He was detected in October 2005, and we went to a sugar-free Halloween celebration that JDRF was involved with at the University at Buffalo later on that month. We took part in the JDRF walk that spring and had incredible support from household, pals, and JDRF. Pals rallied around us and we began a group called WNY Run for Life and got a group to do the Marine Corps Marathon in the Fall of 2006, benefitting JDRF.
See also: Type 1 Diabetes Life Expectancy
AM: What are a few of your greatest obstacles as a mama of a Type 1 child?
PK: Sleep is a constant one, and consistent concern. Jay is 13 years old now and we are attempting to determine how to let him be more independent, however safe at the very same time. This taxes my mind. I remember hearing something about individuals with Type 1 diabetes and how the medication that keeps them alive also has the power to end life. I cannot get it out of my head.
AM: What are some of your best resources as a mommy of a Type 1 child?
PK: Other parents of people with Type 1 diabetes or individuals with Type 1 diabetes, together with social networks, blog sites, JDRF assistance circles, and occasions where you can talk with others in the exact same boat.
AM: What recommendations would you offer parents whose child has just recently been identified?
PK: When Jay was first diagnosed, I felt like I was poisoning him whenever he ate. Ugh… that was such a tough memory. I think I’d tell parents that there is a discovering curve, and it is steep, because the finish line never comes and the patterns change as quickly as you believe you understand them. They will ultimately get to a new normal, however they have to anticipate the normal to be all about modification. I’d likewise make certain they find someone they trust to look after their child so they can get a supper, a couple of hours, and ultimately an overnight break. Otherwise their care of their own child will suffer and their child will not find out that he or she can be safe when mother and father aren’t around.
AM: Tell us about the upcoming walk on Daniel Island, South Carolina (Sunday, March 12, 2017, at 1 PM in Smythe Park, Daniel Island). How can people get included?
PK: One Walk is a day of hope for all those affected by Type 1 diabetes — households, pals, coworkers, and so on. JDRF provides everyone a possibility to have an effect on our futures, and in big part they are responsible for real-time, hands-on items that we use to keep our Type 1 liked ones as healthy as we can… until there is a remedy. One Walk is the largest JDRF charity event in the Lowcountry.
Individuals can get included by registering and raising cash to support the research that is indicated to alter the future. Some folks share their story and write emails and social media posts to solicit contributions and raise awareness. Some people ask entrepreneur they understand to get included. Some people host bake sales or lemonade stands. Some offer carnations or do car washes. Some people begin support groups and go to regional charity events for JDRF. Some come and volunteer as stewards for business that support JDRF. Others attend the JDRF Gala and support it, or partake in JDRF Ride to Cure Diabetes… there are numerous chances and methods to assist!